Listed below are national support organizations and other helpful websites.
Alexander Graham Bell Organization (AG Bell)
The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families,
health care providers and education professionals understand childhood hearing loss
and the importance of early diagnosis and intervention.
Society for Deaf Children (ASDC)
The American Society for Deaf Children supports and educates families of deaf and
hard of hearing children and advocates for high quality programs and services.
Hands & Voices is a nationwide non-profit organization dedicated to supporting families
and their children who are deaf or hard of hearing, as well as the professionals
who serve them. We are a parent-driven, parent/professional collaborative group
that is unbiased towards communication modes and methods. Our diverse membership
includes those who are deaf, hard of hearing, and hearing impaired and their families
who communicate orally, with signs, cue, and/or combined methods. We exist to help
our children reach their highest potential.
This page was developed and maintained by Boys Town National Research Hospital.
This parent-friendly site contains helpful information about childhood hearing loss
in both English and Spanish.
Centers for Disease Control and Prevention (CDC) EHDI
CDC’s Early Hearing Detection and Intervention (EHDI) program is committed to hearing
loss surveillance, research, and health education. Our goal is to help children
with hearing loss reach their full potential. These pages contain helpful information
for families, hearing health professionals and state EHDI program staff.
Center for Hearing Assessment and Management (NCHAM)
NCHAM serves as the National Resource Center
for the implementation and improvement of comprehensive and effective Early Hearing
Detection and Intervention (EHDI) systems. As a multidisciplinary Center, our goal
is to ensure that all infants and toddlers with hearing loss are identified as early
as possible and provided with timely and appropriate audiological, educational,
and medical intervention.
National Institute on Deafness & Other Communication Disorders
The National Institute on Deafness and Other Communication Disorders (NIDCD), part
of the National Institutes of Health (NIH), conducts and supports research in the
normal and disordered processes of hearing, balance, taste, smell, voice, speech,
and language. This page contains information about hearing loss, hearing screening,
ear infections, communication methods and devices, and prevention of hearing loss.
Joint Committee on Infant Hearing (JCIH)
The Committee's primary activity has been publication of position statements
summarizing the state of the science and art in infant hearing, and recommending
the preferred practice in early identification and appropriate intervention of
newborns and infants at risk for or with hearing loss.
American Speech-Language-Hearing Association (ASHA)-EHDI Advocacy page
The American Speech-Language-Hearing Association (ASHA) is the national professional,
scientific, and credentialing association for more than 166,000 audiologists, speech-language
pathologists, speech, language, and hearing scientists, audiology and speech-language
pathology support personnel, and students. This page contains state, federal and
national resources to assist in advocacy efforts for Early, Hearing Detection and
Early Hearing Detection and Intervention (EHDI) State Coordinators
This page includes primary contacts for EHDI State Coordinators and is maintained
by the National Center for Hearing Assessment and Intervention (NCHAM).